| Mission and Values |
The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations, and become valued members of welcoming communities. |
National Down Syndrome Society
666 Broadway, 8th Floor
Welcome to the Goodwin Family Information and Referral Center
Through its toll-free helpline (800-221-4602) and email service ( info@ndss.org), NDSS receives more than 10,000 requests a year for information on Down syndrome. The professionally staffed Goodwin Family Information and Referral Center responds to questions from parents, professionals, self-advocates and other interested individuals.
An NDSS representative is available to respond to email inquiries and phone calls between the hours of 9 a.m. and 5 p.m. ET, Monday - Friday. The Goodwin Family Information and Referral Center is also supported by a translation service that can be accessed in over 150 languages.
The Goodwin Family Information and Referral Center publishes the following publications, which can be ordered by phone or email:
Goodwin Family Information and Referral Center
Helpline: 800-221-4602
Fax: 212-979-2873
Email: info@ndss.org
Website: http://www.ndss.org/index.php
Website: http://www.ndss.org/index.php
Dreams features children and adults who have Down syndrome talking about their dreams and what they're proud of in their lives. This fun and inspirational video made by Scott and Julia Elliott celebrates the work of the National Down Syndrome Society and the larger Down syndrome community.
* Signs and Symptoms *
Physical characteristics
| Characteristics | Percentage | Characteristics | Percentage |
|---|---|---|---|
| mental retardation | 100% | small teeth | 60% |
| stunted growth | 100% | flattened nose | 60% |
| atypical fingerprints | 90% | clinodactyly | 52% |
| separation of the abdominal muscles | 80% | umbilical hernia | 51% |
| flexible ligaments | 80% | short neck | 50% |
| hypotonia | 80% | shortened hands | 50% |
| brachycephaly | 75% | congenital heart disease | 45% |
| smaller genitalia | 75% | single transverse palmar crease | 45% |
| eyelid crease | 75% | Macroglossia (larger tongue) | 43% |
| shortened extremities | 70% | epicanthal fold | 42% |
| oval palate | 69% | Strabismus | 40% |
| low-set and rounded ear | 60% | Brushfield spots (iris) | 35% |
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